26 Miles 4 MND is a marathon photographic portrait project. Its aim is to raise awareness of motor neurone disease and also much needed funding for the Motor Neurone Disease Association.
I am working on it with a friend of mine the professional editorial photographer and filmaker Cristian Barnett. He’s an amazing photographer and the most creative person I know – this is his website http://www.crisbarnett.com/.
Our campaign is nearing the half way mark. As with most creative processes, it’s proving more of a long haul than we’d originally anticipated – but the effort is worth it. We have uncovered some very moving and life affirming stories and have also got the support of household names who have agreed to be photographed to back the project. To find out some more please click on the 26 Miles 4 MND website.
The Motor Neurone Disease Association is the only national charity in England, Wales and Northern Ireland focused on MND care, research and campaigning.
Motor Neurone Disease is a devastating progressive neurodegenerative illness that gradually paralyses people. In the majority of cases it shortens people’s life expectancy.
The average life expectancy after diagnosis of ALS, the most common form of MND, is between two to five years.
I’m lucky because I was diagnosed with a rare variant called PLS – It develops more slowly but can turn into ALS.
There is still no cure for MND and no effective treatments so if you can help in any way at all, we’d really appreciate it 🙂